LET US INTRODUCE OURSELVES
Paul, Emma, Lola and little Isla, also known as the full on, fun filled Vagabond Family. We like to be on the move at every opportunity – be it work or pleasure, sea or land, we just love the freedom of travel.
Our youngest daughter Isla, now 7, was born in New Zealand with a very rare condition called Prader Willi syndrome which affects 1 person in approximately every 20,000. This has been life changing for us all, but we continue to make the most of life and do the best for our family.
One of the main side effects of this condition is that Isla’s always starving hungry causing her distress and endless anxiety, especially around food. It also causes delayed physical and mental development, low muscle tone, inability to have children of her own or also maybe never lead an independent life along with endless imbalances in her little body.
We feel after many years of trying to understand Isla’s condition, with ups and downs of coming to terms with it, adjusting our lives to suit, we now feel ready to share what we’ve learned with others who are where we once were in her early life.
WHAT WE’RE DOING
We the Vagabond Family have decided to minimize our lives and move into our bus, travel New Zealand spreading awareness for PWS as we go.
Along the way we will visit seminars and visit family’s affected by PWS. Some of these families are unable to venture too far from home so we’d like to share our journey with them as we video blog our way through all this wonderful country with all it has to offer from snow-capped mountains to sandy beaches and all the bit in between along with sharing our life of us in a bus and all the ups and downs that it may present us.
As we travel we will spread awareness and hope to raise funds for PWS research by sharing our video blog with the world. We invite you to join us on our exciting adventures around New Zealand in our bus to help support research for Prader Willi syndrome.
TRAVELING TO MAKE A DIFFERENCE
The Vagabond Family blog records our experiences and gives a bit more background on who we are and why we’re doing what we’re doing. If there is anything you’d like to know or would like us to cover please get in touch.
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