Well, I've doing a lot of writing based on where, and what we've been doing, and feel I must mention as we go about our day today life traveling in our bus, we continually chat to curious people we meet about PWS ( Prader Willi syndrome ). People see our bus with the orange stickers, [...]
What a lovely little market- which we just about survived - gone are the days of a relaxing family stroll around a market place, and I don't and will never take Isla to a supermarket !. We went as a family and I managed to get some nice fresh produce while Paul looked out for [...]
As time goes by I'm going to try and give you a true in site as to how we make living with anxiety, on the move, work for us all. As you may know most people with Prader Willi syndrome also have varying degrees of anxiety. We've read that change would be hard - and [...]
