Isla was born in Christchurch With Prader Willi Syndrome, and when she was two months old, we decided to move back to Cornwall, UK, to be nearer family and away from the ongoing Earthquakes which made us feel uneasy. We flew when Isla was still NG tube feeding, so I was still expressing which made [...]

Islas rare complex chromosome condition is called Prader Willi syndrome (PWS) which affects 1 in every 15-20,000 people making it very rare and unknown to most. It causes stunted growth, low muscle tone, delayed mental and physical development, insatiable hunger due to no signals between her stomach and brain- therefore always hungry, causing a lot of stress and anxiety, [...]